My 10 Year Long, Crazy Fluoroquinolone Antibiotic Poisoning Story: For me, “Floxed” is Also Mercury and Fluoride Poisoning
Helpful info: Levaquin, Cipro, Avelox, and others are fluoroquinolone antibiotics; silver fillings in your mouth are 50% mercury and excrete daily; we get the most fluoride through our shower.
*15 Ideas for the Treatments that Worked Best for me are Below (just scroll down) - the short story is first and then the long story with MANY more treatments, therapies, and supplements that I’ve tried and what has worked and helped and what hasn’t are after that under the long story.
*I update this page as I find new ideas that work - also, I update the title - I wrote this at 7 years post flox - now it’s almost 10 years. When/If I fully heal, I will update that too!
My story is one of the fluoroquinolone horror stories people read online. Most people are mildly to moderately injured and heal without the need for ALL of the therapies I’ve done. I just want to make that clear upfront so if anyone who is newly injured reads this story, they don’t become more afraid.
But also, understand that even those of us severely hurt, do find some relief - though healing may take lots of time, therapies, treatments, and money (and of course there are those hurt worse than me who do not heal).
Health insurance does not cover root cause healing (unless it’s emergency medicine or surgery) so regenerative medicine, therapies, treatments, and supplements that are needed to heal from the damage done by pharmaceuticals (or vaccines) are not generally covered.
I have discovered several therapies, treatments, supplements, and detox methods that have helped me tremendously and those are all shared in the story below.
Approximately 1.5 million people a year are hurt by fluoroquinlone antibiotics just in the US alone. 30 million people in the US over the last 20 years, according to Dr. Stefan Pieper, Integrative Medicine Specialist, Mitochondrial Medicine Expert, and author based in Konstanz, Germany.
And that’s just the people who know the root cause of the damage: TBI, nerve injury, autoimmune symptoms, neurodegenerative symptoms, paralysis, mental health issues, mitochondrial dysfunction causing chronicc fatigue syndrome, insulin problems, food sensitivties, mast cell activation, organ damage, tendon, ligament, bone deterioration, TMJ joint and jaw deterioration, muscle wasting and weakness, chronic debilitating pain, etc.
Many people do not have symptoms show up for 3 months to 1 year after taking the antibiotic so many will not connect the antibiotic to their problems.
Severe mitochondrial toxicity can cause early death, disability, and many autoimmune, neurological, and degenerative conditions and as well as structural degeneration of the bone, joints, ligaments, tendons, muscle, and organs, including brain, heart, kidneys, etc. Digestive, hormonal health, and thyroid health conditions as well as depression and anxiety are all very common.
The help I received from the from the medical community?
“I’ll write that in your chart.”
“All drugs have side effects.”
That’s it. Poisoning cannot be cured with poison/chemicals/pharmaceuticals. They cannot help me.
We are our own advocates and healers. However, there are hero doctors who step forward and will try to help you on your journey - it is expensive.
Without information on the known effects, many people are suffering. We each have to make our own choice what medicine/vaccines to take as we will be on our own with the consequences.
Here is a link discussing the antibiotics between Dr Pieper and Talia Smith who was severely damaged and on hospice for awhile. After 4 years, she still needs 24/7 care.
The Short, Quick, and to the point version that I post on Facebook for group members’ asking questions on what to do and why (shortest I can make it anyway):
For me, being “floxed” is a 3-in-1 poisoning - fluoroquinolone (whatever toxic combination of poisons that are in these), fluoride, and mercury poisoning. The fluoroquinolones kicked mercury out of hiding places in my body and brain and caused traumatic brain injury (TBI) symptoms and many other issues. The carbon-fluorine bond is not strong in pharmaceuticals like they originally thought and can and will release fluoride into the system - causing fluoride poisoning for some people. Fluoroquinolones were studied and proved to be on that list - here is a good article to read on that: Pharmaceuticals - Fluoride Action Network and this one FLUOROQUINOLONE ANTIBIOTICS And other Fluorinated Drugs - describes fluoride poisoning by fluoroquinolone antibiotics.
Best article I’ve read on Mercury Toxicity/Poisoning is this article: Mercury: The Quintessential Anti-Nutrient. This helped me understand some of the effects I had after fluoroquinolone poisoning because of the mercury being released suddenly from my brain and other hiding places (example: GABA/Glutamate issues, head tightness and pressure, and many symptoms I experienced).
15 BEST IDEAS for me:
(Updated 9/2023 after I discovered C60 - a life changing detox supplement! I also updated in 2024/25 when I found Softwave treatment for connective tissue and stem cell stimulation and Kombucha tea that had low enough fluoride I could drink it that detoxed and provided energy.)
1) C60 (carbon 60 fullerenes) - C60 is the only supplement I found that successfully pulled out the fluoroquinolone antibiotics (whatever toxic combination that entails) for me. This article on the Enhanced adsorption of fluoroquinolone antibiotic using doped C60 in the environment is what gave me the idea to try it for the body. After the first dose, I could feel “pulling” from my throat, neck, head, lower back, eyes, jaw, and sinuses. After a few weeks, for the first time in 8 years, I did not feel “sick” just tired still. (Energy is usually the last part of health to come back while healing.) The right C60 product brand will have used a process called sublimation so the product will be clean and not use solvents to extract the C60. I use the one I linked, C60 purple power, and I get it in Olive oil because I read an article by Dr. Rowen (top ozone doctor in the US) that it works best in this oil, but also works in the other forms (MCT, Avocado, and gummies). I am fluoride hypersensitive but this holds onto fluoride so I do not get poisoned while it pulls it out as long as I go slow. I started with only 1/4 tsp every few days, and went up to 1 tsp a week (1 tsp daily is recommended). I found some studies that C60 was able to pull out mercury and different fluorides (for me fluoroquinolone poisoning is also mercury and fluoride poisoning). C60 is also supposed to be able to hold onto many toxins and heavy metals. Studies have shown C60 to be a mitochondrial protectant, anti-tumor, anti-inflammatory, as well as antioxidant, and has many other benefits including reducing allergies.
Update 2/05/2024
I love C60 so much, I decided to become an affiliate - I’m always telling people about C60 anyway! Might as well. My code is Starfall10 for 10% off or you can use the QR code below at Shop C60.
Other Benefits of C60:
Supports hormone production
Reduce ROS - radical oxidative stress for optimized mitochondrial function which means more energy
Increases stem cell production. As we age, our skin gets thinner. Increasing stem cell production, helps the quality of our skin.How much to take?
1 tsp daily; if overweight, 1 Tbsp daily may be needed.No need to go over 2 tbsp a day, they say that’s a waste!
When to take?
Best time to take is morning because it could keep you up if take in evening due to stimulating effects of more energyWhat to look for in C60 manufacturing?
99.99% pure
Uses Sublimation process (some companies use solvent produced which leaves behind toxins)Stored in dark glass bottle if in liquid form.
3rd party testing - C60 has certificate of analysis on QR code that is wrapped around the packaging on your C60 bottleC60 is not intended to treat any medical condition. Please talk with your doctor or qualified healthcare professional for questions you may have concerning diagnoses, treatment, concerns or benefits for your individual healthcare needs.
2) Magnesium oil - magnesium protects against fluoride and we need it for over 300 enzyme processes - most people are low in magnesium. Fluoroquinolone antibiotics specifically state not to take magnesium when taking these antibiotics -they interfere with the mechanism of action- unfortunately that means I quit taking my magnesium pills which are also protective against fluoride toxicity. Magnesium is usually the one supplement anyone who gets fluoroquinolone poisoned needs to take.
I put 1 cup of ancient minerals magnesium bath flakes and 1 cup distilled water on the stove and heat until dissolved. Then pour it into glass container and wait for it to cool. This is cheap and this does not add any other toxins to my body like most supplements - even the good ones.
3) Organic orange peel tea (tons of vitamin C and detoxes heavy metals/mercury, chemicals, fluoride, etc) - this helped my brain the most of any supplement. 1 Tbsp of organic orange peel in 1 cup of distilled water. I use a tea cup and pour water over the peels. Let steep for at least 20 minutes before drinking.
I get organic dried orange peels on Amazon or can buy at mountainroseherbs.com. I read that dried is better than fresh orange peels - though I cannot remember the reason for that.
4) Iodine - either from food like seasnax or nascent iodine- food source is best (iodine detoxes halogens (fluoride/bromine/chlorine) and is needed for thyroid, brain, breast, and eye health among others.
5) Ionbiome - detoxes at cellular level and heals stomach and helps brain.
6) Fluoride Tea (hannasherbshop.com) - removes fluoride.
7) Hyperbaric Oxygen Chamber Treatment (HBOT) (40 sessions) - got rid of brain fog and helped traumatic brain injury (TBI) symptoms tremendously. I’ve read that some people use HBOT for mercury and lead poisoning- this did not pull out mercuy for me though. Organic orange peel tea worked best for me to detox, but this treatment helped with the damage and was definitely worth the cost for healing some TBI symptoms.
8) Ozone injections - in head and neck bc of damage to ligaments/tendons/connective tissue/overall collagen degeneration
9) TMJ dentist - bc of bone deterioration in tmj joints and overall collagen deterioration (did lose 1 tooth a year after bc of the poisoning and all teeth were loose but was given homeopathic remedy called Bone Support by chiropractor who got it from whitedovehealing.com and that helped - no more loose teeth and did not lose anymore. I started drinking Fluoride tea at that same time bc he said I needed to find a way to get fluoride out).
10) Chiropractic care- adjustments with activator, dry needling connective tissue in knots all over my head and body from the connective tissue deterioration and destruction.
11) Softwave Therapy - for connective tissue damage regeneration and healing
Update: The Softwave Therapy worked better for the pelvic area and was MUCH less painful. Pelvic physical therapist - dry needling, helpful with Myofascial knots and bladder problems after poisoning. Some areas were more helpful with chiropractic needling and others were more helpful with physical therapist needling.
Update: Softwave Therapy for all over connective tissue damage.
I promised to update on the progress Softwave Therapy has made for me. The connective tissue all over my body was damaged severely from Levaquin. Softwave has been a real game-changer in healing for me. I am currently on year 10 of healing and started Softwave 12 months ago.
I did 24 Softwave treatments on my head (8 treatments is typically the most anyone would need on any area) however, the connective tissue on my head was severely damaged in a way that prevented lymphatic fluid from draining (adhesions formed). I have been doing ozone injections in my head every few months for 5 years and those help the deepest areas that are hurt and do still help differently than Softwave. This is all very unlike most people who get poisoned. I have only talked to one other person whose head was injured in this way and it wasn’t near this severe. Hopefully it doesn’t happen to anyone else, but if so, this is how I have dealt with the damage.
This therapy detoxes the tissue - no way around it. So, I do have to go slowly, which is why this is taking a long time for me. Some people stop because they feel this therapy is hurting them. However, what I found to happen for me during the first few months was the phenomenon known as “retracing”. Which doctors describe as the body “going back over” and attempting to heal areas that are hurt on the body - which will cause those areas to have the same symptoms of pain they did when originally hurt. I was not hurt by this therapy is any way except that I did have to slow way down because detoxing is really hard on my body. Since I am hurt in many ways and need alot of healing, I did have many areas “retrace” but then heal. Which is amazing.
Softwave is “unfocused” shockwave-like treatment but is different than shockwave and also different from Stemwave which is like Softwave except is focused instead of unfocused. I read that Softwave goes deeper into the tissues. (I am not an expert on these machines so make sure you do your own research). The advantage for me in doing unfocused treatment is that the areas that are not specifically focused on in the treatment are also affected and can heal since the treatment causes stem cells to amp up everywhere. My wrists and ankles became stronger even though I haven’t yet had treatments to my legs, ankles, and feet (I am sure the this will work for those areas because it has everywhere else, but will update this paragraph when I get to my legs).
I have had treatments on my upper and lower back, neck, face (I had TMJ issues severely and treating this area helped so much even though I have been seeing an incredible TMJ specialist for many years - this therapy worked differently)as well as my pelvic area and hips - which were also severely hurt. ALL areas I have treated are so much better. I am no longer in pain.
I will update these paragraphs when I’m completely done with the therapy.
Update 3/2024: I discovered a new INCREDIBLY HELPFUL therapy called Softwave. Basically, my connective tissues and muscles were “glued” together by the fluoroquinolone antibiotic all over my body in different areas - and this is helping “unglue” my tissues and is supposed to help rebuild bone, tissue, muscle, mitochondria, blood vessels -anything that is connective tissue, so is supposed to help with Achilles tendon, other ligaments and tendons, and neuropathy - which I know many people in this community need help as those areas are damaged frequently by fluoroquinolones.
I will update after I am finished with treatments (I do not yet know when that will be); the most affected areas for me in this way, was my head, jaw, and neck. I will also be trying this for my arms, legs, and back. Though the head is not contraindicated for this therapy (they are using it on the brain for Parkinson’s tremors), the chiropractor I do this through, does turn it down as they must be careful around the head. I did not have any negative results from this in the 2 treatments I have received.
The other body areas have been more tested but the head is the area I need most. I recommend finding a practitioner who is willing to be flexible if you were hurt in ways that are unlike most people, like me.
The technical term for the gluing that happened is called “adhesions” except instead of this being in a couple of spots - it was everywhere and my head was damaged severely. After 4 years of ozone injections into my head where the knots were the biggest, I was able to move on and find a therapy for deep tissue and muscle overall adhesions - which is when I discovered Softwave therapy (if you have read my story, you know I pray and then am led to different solutions).
Softwave is designed to bring stem cells to the affected and damaged areas that are treated and then helps tissue regeneration and repair, mitochondria support and healing, and increase blood vessels and flow by 300%.
This therapy is definitely worth it for me already- however, I will not know the full extent of healing (or what it didn’t help with) until 12 weeks after my last treatment - that’s how long the healing continues. I have only had 2 treatments and so much relief that I wanted to go ahead and share these results in case anyone else is interested in researching this option. https://softwavetrt.com/
This link talks about Softwave healing mitochondria.
https://www.softwaveinatlanta.com/blog/energizing-healing-mitochondrial-revitalization-with-softwave-therapy-at-atl-pain-institute
12) Wahls Protocol by Dr Terry Wahls - great book that teaches how to eat correctly and set up environment for healing mitochondria.
13) Organic Kombucha tea (updated 2/2025): detox at a pace I can handle, provide energy because of b-vitamins - supplements make me sick, and contain vitamin C. I talk about how find a low-fluoride Kombucha tea and how to make it. All detoxes work differently: These worked best and are also in the article I write. C60, Diatomaceous Earth, Ionbiome, and Kombucha tea (read article HERE)
14) Moringa from globalhealing.com. In 10 years, this is the only supplement that helped me and did not make me feel bad. The detox supplements all detoxed well and was needed for me but I felt terrible taking them. This supplement does some gentle detoxing for me but also helped me with energy and feeling more relaxed and calm. There is alot of nutrients in this supplement, the most nutrient dense herb on the planet that they know of, some of that includes iron, b-vitamins, vitamin c, amino acids (that make up dopamine, serotonin, melatonin and all other neurotransmitters), luetin (eye health), and many more. I did try B-vitamins and vitamin C and amino acids and melatonin in other forms but I did not feel well. For some reason, this is the only supplement that works well for me. The bottle says to take twice a day, but that is too much for me - also too much detoxing, so once a day in the morning is what I take that helps me. It’s supposed to help sleep as well. For me, one of the best benefits is reduced inflammation.
From globalhealing.com site:
Nutrient Powerhouse: Moringa, known as the 'Miracle Tree' {or tree of life}, is highly regarded for its abundant nutrients that enhance overall wellness. Its small, round leaves are naturally rich in over 90 different plant-based vitamins, minerals, antioxidants, and amino acids. In fact, moringa is one of the most nutrient-dense plants in the world. With its unique nutritional profile, our moringa supplement is a superfood for supporting your overall health and well-being.”
From moringatreeoflife.com:
Moringa Oleifera leaves and pods contain 90+ nutrients, 46 antioxidants, and 36 anti-inflammatory compounds. Researchers are calling it the most nutrient rich plant on earth.
Moringa leaves are about 40% protein, with all of the 9 essential amino acids present in various amounts (histidine, isoleucine, leucine, lysine, methionine, phenylalanine, threonine, tryptophan, valine). Moringa is considered to have the highest protein ratio of any plant on earth that has been studied thus far.
Go to moringatreeoflife.com to learn more - including which nutrients, minerals, and antioxidants are in the herb
What are some KNOWN BENEFITS?
Moringa has effectively cured various diseases such as neuropathic pain, cancer, hypertension, diabetes, obesity
Has a role in treating paralysis
Traditionally, the plant is used to cure wounds, pain, ulcers, liver disease, heart disease, and inflammation
Treats malnutrition
These benefits and more found in this 2023 article (I’ve included exerpts at the end as well), Moringa oleifera: An Updated Comprehensive Review of Its Pharmacological Activities, Ethnomedicinal, Phytopharmaceutical Formulation, Clinical, Phytochemical, and Toxicological Aspects.
Plus, an increase in stem cell regeneration, specifically Mesenchymal stem cells (MSCs). Probing Regenerative Potential of Moringa oleifera Aqueous Extracts Using In vitro Cellular Assays
MSCs are, according to the NIH, “used as a tool to treat degenerative changes in joints and to reconstruct bones and cartilage, and are used in plastic surgeries, aesthetic medicine, cardiovascular diseases, endocrine and nervous system diseases, cell transplantation, and in the repair of damaged musculoskeletal tissues.”
MSCs are “able to differentiate into mesenchymal derived tissues including bone, cartilage, fat, tendon, muscle, and neuronal tissues.” Moringin Induces Neural Differentiation in the Stem Cell of the Human Periodontal Ligament
Also Moringa is used to treat neurological disorders; Alzheimer’s, Parkinson’s, Huntington’s, epilepsy, and neurotoxicity. An update on the emerging neuroprotective potential of Moringa oleifera and its prospects in complimentary neurotherapy
Below is my article on Moringa benefits.
My Favorite Supplement! Miraculous Moringa; "Tree of Life" or "Miracle Tree"
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* Before I get to the article, just a quick shout out and thank you to all my subscribers and followers - your hearts, your comments, your re-stacks on my notes or articles, and reading Killers and Healers mean the world to me! I appreciate each of one of you.
15) Stay away from fluoride: Response Protocol for Chronic Fluoride Poisoning.
Clearly Filtered: Fluoride Filter, Water Bottles & Pitchers.These filters pull out fluoride.
Also, most of the fluoride we get daily is through showering (this information was confirmed by Fluoride Toxicity Research Collaborative (FTRC), Pelican (now Pentair), maker of filters, including fluoride filters, and University of California professor Dr. Richard Sauerheber, who speaks on fluoride - I emailed him and he confirmed that no filter will completely get out fluoride and we do get more fluoride through the shower than drinking water all day - which is also what FTRC and Pelican (now Pentair) customer service stated. Dr. Sauerheber said he just uses a bucket with distilled water in the shower. I heat up distilled water on the stove also - except my husband set up a camping shower in our shower and I put the hose in the bucket of already heated water, and use that to shower. That is the only way to get rid of 100% fluoride. Since we get more fluoride through our shower than drinking water all day, for me that was a necessity since I am now hypersensitive.
Also, SAAT (Solimans Auricular Acupuncture Treatment) will do testing for sensitivity to fluoride, chemicals, foods, etc, and can also treat allergies and sensitivites including fluoride as well (need to detox metals first for this to work well - C60 will do that and it is still important to stay away from fluoride/ fluoride is harmful to the body/brain- this just helps not react badly to tiny amounts).
ALCAT lab tests are supposed to show sensitivity level to food and chemicals including fluoride. This is just a blood test and does not treat allergies.
High levels of fluoride will not show in a blood test unless you were just poisoned. Tests for tissue and bone fluoride levels would be needed. USA does not have these tests available - India does. Not sure about other countries.
Just as an fyi, pressure in head and tightness can also be mercury poisoning (for me, I got both fluoride and mercury poisoned by fqs - they kicked mercury out of its hiding places) and caused much damage. Testing is also not always accurate for heavy metals. Blood tests will not show heavy metals or mercury hiding in tissue/bone/etc and hair tests may not show toxicity either because some people are not able to detox well so tests show that their levels are normal or fine when they are not.
Refloxing - for me, is just chemicals/fluoride/heavy metals either being released or ingested (including fluoride). I eat organic and antibiotic free meat and eggs. All pesticides have fluoride.
Like Dr. Pompa, (Mercury Detox - Dr. Pompa) who was mercury poisoned by silver/mercury fillings, he would start feeling poisoned again after getting better and learned to start his detoxing treatment regime again. For me, that is orange peel tea, then fluoride tea the next day (I do this 2x monthly, but make sure to do it if I have done a treatment like ozone injections or SAAT that I know will cause my body to start detoxing).
I needed to fix structural issues in my head, neck, and body through chiropractic care - both adjustments and needling. The poisoning affected connective tissue that was in knots over my body/neck/head - so extreme that my head could not drain well - this is too hard to explain, but you would know if it happened - full feeling and need to lay down and move around head to get lymphatic fluid to drain. I have read that deep tissue damage can cause this to happen (I have not heard of another fluoroquinolone poisoned person that this happened to - which doesn’t mean there isn’t one, but it is apparently rare). The poisoning also deteriorated bone in my TMJ joints and jaw. I found a really good TMJ doctor - not a regular dentist - who had many years of extensive training in TMJ area treatment who helped me using appliances and ozone injections into the head and neck. I lost one back tooth a year later and all my teeth started becoming loose - my TMJ dentist told me to find a way to detox fluoride out of my teeth or I might lose them all - that’s when I discovered Fluoride Tea also when my chiropractor gave me shark cartilage in the form a homeopathic remedy by Dr Recommends brand called Bone Support that he got from whitedovehealing.com. I did drink bone broth for the collagen support for the first 9 months but had to stop because of the fluoride in it. I did not lose any more teeth and they are not loose. The Fluoride Tea and Bone Support worked - also the organic orange peel tea removes mercury from that area, which mercury can also cause loose teeth.
THE LONG VERSION with more information on the poisoning symptoms I experienced and more healing ideas
I took a fluoroquinolone antibiotic at least 3 times, last time at age 34; looking back, after I took the first one at age 31, that’s when my health started going drastically downhill physically and mentally for 3 years - my brain wasn’t working right, my body wasn’t working right. I already was hypersensitive to fluoride but did not know it and was being poisoned everyday, by taking a shower and drinking tap water and eating foods high in fluoride and cooking with nonstick pans. But I didn’t know that at the time. I discovered this 3 years later, when I took 2 rounds of fluoroquinolone antibiotics in 6 months and it almost destroyed me, but most definitely devastated my body and brain in weird and awful ways that I am still recovering from today, almost 10 years later.
I would learn that I was actually fluoride poisoned from the antibiotics (The Fluoride Toxicity Reserach Collaborative) and after years of studying fluoride and how to stay away from it, I learned I could not. Because it is in everything. But I discovered SAAT acupuncture could desensitize to food, environmental toxins, and chemicals, including fluoride. It has worked to make me less sensitive to fluoride, but I need to detox more mercury out for the auricular acupuncture to work best. So, I am still in the process and working on this; sometimes they have to start with desensitizing someone to mast cell activation or do a heavy metal detox before the treatments will be highly effective. I also learned that all the symptoms I had growing up were chronic fluoride poisoning symptoms and that how sensitive you are to fluoride runs in families, it’s genetic; though fluoride is a poison to everyone.
(update 2/2025) The The Fluoride Action Network (FAN) sued the Environmental Protection Agency (EPA) along with other groups against fluoride based on the many well-done, highly respected and peer-reviewed global studies on the neurotoxic (brain poisoning) effects of fluoride. Federal Judge Chen ruled on the case in 2024 - 7 year long trial - and stated that evidence showed fluoride to be an unreasonable risk and lowers IQ. The EPA is currently appealing the decision.
Most people are unaware of the issue or do not believe it affects them because it does not affect them immediately. Most fluoride poisoning is chronic - meaning it poisons over time, instead of immediately, unless someone is hypersensitive to it, like me, or has taken fluoroquinolone antibiotics! But when we go to the doctor with chronic fluoride poisoning symptoms, we will not be given a test for high fluoride levels in tissue or bone, because we do not have those tests in the United States. They do in India and other countries. So, we will not be diagnosed with chronic fluoride poisoning - we will be diagnosed with cancer, thyroid disorder, autoimmune disorder (any of them), Alzheimer’s/any neurodegenerative disorder, cognitive disorders, mental health disorders (especially depression, ADHD, and schizophrenia), osteoarthritis, fibromyalgia, nerve damage, connective tissue disorders, craniosynostosis, bone diseases, rickets, immune system dysfunction, chronic fatigue syndrome, dental fluorosis, interstitial cystitis, kidney stones and kidney disease, respiratory disorders (including COPD and asthma), eczema, allergies, multiple chemical sensitivity, gut problems and digestive disorders, eye problems, hearing loss, hip problems, joint disorders, cartilage/ligament/tendon laxity, insomnia/sleep disorders, diabetes or impaired glucose tolerance and the list goes on…I encourage you to read books and go to websites I have provided for further reading on the subject.
Fluoride Toxicity Research Collaborative
Dr. Dean Burk Ph.D (34 years at the National Cancer Institute). Judicial hearing, January 14, 1982. Safe Water Foundation vs. City of Houston, District Court of Texas, Harris County, 151st Judicial District, 80-52271.
Although I knew little to nothing about physical health when I started my healing journey, I was already into spirituality and finding my identity and purpose and value and worth in Jesus/God and had already been into mental health (I have a master’s in clinical psychology), but I did not at all understand what my body needed and didn’t need and how to detox and stay away from toxins and how to actually eat right.
I have spent almost 10 years recovering from fluoroquinolone/fluoride/mercury toxicity - called Fluoroquinolone Associated Disability (FQAD) by the medical community and in literature and research studies. The FQAD designation came 10 months after I was poisoned and disbelieved by numerous doctors and specialists who said that what happened to me couldn’t happen to me from fluoroquinolone antibiotics. Most believed it was “all in my head”. But still, I was lucky. I was able to vindicate myself in 10 months. Some people in the forums had been gaslighted by the medical community and abandoned by friends and family for “making up things” for 20 years. Very sad.
I spent years trying to let the fluoroquinolone community know that fluoride had a big component to the poisoning. I wrote articles, sent e-mails, did a podcast - it felt like it all fell on deaf ears. One group disallowed any talk of fluoride, FAN research scientist said it wasn’t possible, and others (excluding FTRC), just didn’t know what to think of my claims. I sent FAN research studies that showed the carbon/fluorine bond can be broken and has been proved to be broken in fluoroquinolones, so one can get fluoride poisoned. I never heard back, but the researcher for FAN apparently did look into the issue and then changed their website and their top ten things not to do included taking a fluoroquinolone in the list. Eventually, some doctors and some online help groups somehow came to understand the fluoride issue and it’s included on their sites for those with FQAD. I am so happy to see this progress.
Mercury poisoning was the other BIG issue about being fluoroquinolone poisoned for me. I had silver/mercury fillings from childhood to age 32 - I was poisoned at 34. I already had many mercury poisoning symptoms but did not know it. After I took the fluoroquinolone antibiotic, it kicked out mercury into my system. That was the missing link to my recovery that took me years to find out how to safely get rid of mercury. I tried lots of treatments- none worked until I tried organic orange peel tea and C60 fullerenes. This was the game changer for my brain, my mitochondria, and whole body. It wasn’t just fluoride poisoning- it was fluoride AND mercury poisoning.
I prayed continually for guidance; God really shows up when people are hurt and trusting Him. I read too many to count stories of healing ideas and scholarly articles and journals and then prayed and asked what to do next. Then followed whatever I heard in my heart or spirit. This worked for me - always. That’s how I chose what to do. I would come across something or just get a feeling that this was my next step - or maybe I just could not get an idea out of my head. I tried things. God allows us to be a part of the process. That amazes me. Sometimes, it seems just putting the energy into something starts to change things - even when you are not a part of it. I believe this goes along with that they are learning in quantum physics. Our intent has an effect on what happens in life.
Within days of getting severely poisoned, God started showing up BIG and LOUD in my life. Though he was always there quietly, as I was being directed and given intuition and good or bad feelings about different situations and what to do in my life.
But what is exciting about this for everyone is not that God showed up big for me - it’s that he is a God who has no favorites (Romans 2:11) - which means he will show up big and loud for YOU too. He is an ever present help in times of trouble (Psalms 46:1).
“For God does not show favoritism.” Romans 2:11
“God is our refuge and strength, an ever-present help in trouble.” Psalms 46:1
Also, I believe God brings us together to help each other heal. If it wasn’t for the diligent researching, studying, and tenacity of ordinary people (many of whom are not scientists or doctors) and sites like Floxiehope, My Quin Story, The Fluoride Toxicity Reserach Collabortive, and the hundreds of thousands of people who are hurt and suffering who have offered their story and suggestions on those sites and other forums, I would not be here today. The poisoning was too awful; I have never been so aware of my need for other people.
When we are hurt or suffering, our world slows down. Our priorities and commitments shift. And a level of grace, mercy, compassion and care and need for our fellow human beings takes the place of competition, chaos, judgment, and independence. We are left with the knowledge that we have been thinking wrong. Maybe chasing the wrong things. Caring about things that do not matter in the end. I didn’t notice how incredible, resilient, hopeful, and persevering we beautiful humans are - until I saw them fighting for their life, for the quality of their life, and giving up time and energy to help others fight for their life too. An incredible amount of respect, deep gratitude, and most of all, love for humanity has swept over me during these last 8 years.
I would also advise others to find doctors or a counselor who has empathy. Some days in the first 2-3 yrs were so hard, my chiropractor just sat with me while I cried. I don’t remember what he said. It didn’t matter as much as him just being there with me. It’s a different kind of being there when someone is that broken. I got to experience that myself when I was a mental health therapist. Except this time, I was on the end of suffering and needed another human being to care. To just be with me in the pain. In this kind of suffering, there really aren't any words that can make it better. It’s the presence of a loving human willingly entering into a sacred place of suffering with another, just to help carry the weight of the suffering for a moment. And it’s brutal. And it’s beautiful. And I had no idea how powerful that is until it was me that needed help. What amazing people God created.
As a more naive Jesus Christ follower, I believed moving mountains by faith meant that the mountain (the illness, the situation, the suffering) would be taken away by faith and prayer. But I’ve come to learn that choosing Jesus and his ways does not stop the storms of life; but only that we are promised not to go through them alone. Sometimes those sufferings are what moves the mountains.
Maybe I have had a glimpse of what God sees in us. Of why he created us and why he wanted us. Of why he would send his son, Jesus, to die on the cross for us - just to have a chance at a relationship with each one of us. God’s love for us is beyond understanding. Perhaps this was the mountain that was moved for me; a greater understanding of the love of God for humanity. And now, hopefully, my suffering and the hope of healing my story brings will move mountains for other people too.
Dealing with the Physical Symptoms and Emotional Distress of Fluoroquinolone Associated Disability (FQAD)/Fluoride Poisoning
Symptoms and Treatment I Used for the Symptoms
1.)Traumatic Brain Injury: Hyperbaric Oxygen Chamber Treatment (HBOT). At 8 months out, I still had severe brain fog. Traumatic brain injury (TBI) - TBI is called neurotoxicity if hurt by a chemical rather than in a car accident or some other outside force. They list 3 levels, mild, moderate, and severe for TBIs. My symptoms fell into the moderate category. I went to a hyperbaric oxygen chamber because I had read good reviews and articles for using the hyperbaric chamber for TBIs. I did 40 sessions. The chamber I was in was a stand alone chamber that looked like a submarine - several people could be in it at once. It was expensive (about $7,000 for 40 sessions), but worth it for me. The brain fog did lift and did not come back. Overall, my brain was much better afterwards. Also, I learned to stay away from any supplement or spice with glutamate, glutamic acid, glutamine, MSG - and all protein powders b/c they contain glutamic acid. For me, these were horrible for my brain and memory. I found this out because many brain supplements contain glutamine - which I decided to try and went downhill mentally. After I got off them, I was ok again. I later read from Dr. David Perlmutter, a well-known neurologist, that although doctors tend to recommend these supplements, it is a really bad idea for those with brain problems and they will get worse with free glutamine. It is fine in foods but taking it by itself, for me, was awful, and according to Dr. Perlmutter is a bad idea. So, just an fyi. I stay away from brain supplements now. I learned that mercury poisoning will also cause GABA/glutamate issues.
For ANS system: My chiropractors had me listen to a meditation song that was to intentionally reconnect neurons and calm the brain. This helped tremendously for me. Only took a couple of months to make a huge difference. I did this for a couple of years to stay calm and centered while going through this journey.
2.)Dissolved/Deteriorated bone in my head and jaw: (happened quickly and over time)- high tech scans showed that my tmj joint on one side was almost gone and on the other, severely deteriorated; One year after being poisoned, I lost a back tooth and all my teeth were loose - I was facing losing them all. This is when my tmj specialist knew I had been fluoride poisoned. Because teeth do not just start coming loose - but they do when people are fluoride poisoned. My chiropractor remembered he had read about a homeopath called Bone Support - this saved my teeth. Seven years later, I still have only lost one tooth. Ozone injections and expensive appliances set up a healing environment in my mouth to regrow the tmj joint, cartilage, ligaments, and tendons. Other dentists told me this was not possible - however, it is. It’s important to get to the right doctor/dentist!
https://softwavetrt.com/ Softwave therapy helped the connective tissue and muscle adhesions and regeneration all over my body, but I especially needed it for my head and neck.
3.)Nerve damage, full body: I used a homeopath called black mamba and a quantum biofeedback machine called the SCIO. It worked, most nerve damage was not permanent for me. It did take years to heal. But these treatments worked. I probably still have some nerve damage if that is what Raynaud’s syndrome is - doctors debate at how it is caused. But my hearing was going out completely in one ear and that was healed. My eyesight was abnormal - the symptoms I had were odd and hard to describe, but others in the help group forums talked about having the same type of damage before they went blind in that eye. We used the SCIO for the nerves in my eyes also. My eyesight is now normal.
update: Softwave also heals nerves. That’s one of uses for this therapy. I still had nerve damage in one ear and that was healed with Softwave.
4.)Connective tissue destruction and full body damage: Bone broth with chicken feet (from Whole Foods) for 9 months. I stopped becaue there is fluoride in bone broth due to it being pulled from bones. However, it was probably worth it for me. My Achilles heels looked like they would explode for months but they did not. I believe the broth saved me there. Though my Achilles heels tendons are still tender 7 years out.
Peptide therapy for repairing connective tissue damage, ligaments, cartilage, tendons. I took homeopaths with shark cartilage. Other people take supplements with peptides.
Chiropractic adjustments (with adjustor - not popping or cracking!) helps keep my structure in place. Also, my chiropractor does needlework, which has been helpful for me.
My connective tissue all over my body is damaged. My legs from the knees down are the worst areas after my head and neck. I used to run for exercise from ages 12-34 (until I was poisoned), but now my legs and feet hurt when I walk. But I can walk. The therapies I have tried did help - I can go on short walks every few days, but my ligaments, tendons, and tissue are still damaged enough that it’s painful if the walk is longer. The needlework has helped and I believe peptides are as well - this is an area I will continue to work on and believe in for healing.
The connective tissue damage in my head and neck was so severe, my head would not drain properly. I felt poisoned all the time. Needling was not enough. I started doing ozone injections in my head at 3.5 years - 7 years. It is helping. From my research, I found that ozone can break down damaged tissue and help regenerate new, healthy tissue that “lay” correctly. I believe this is what is happening for me. However, there are no tests to know for sure. My head still does not drain perfectly, but the symptoms are so much better. This symptom has been the worst, most expensive, and the most difficult to deal with - and the hardest to explain. No one understands what I am saying nor why ozone injections help - even the doctor doing them doesn’t understand exactly how this is helping, but it is. Sometimes, during this crazy poisoning journey, you are on your own; I am thankful to have God to pray too. This idea for ozone injections came after prayer. Then I found articles of doctors using ozone injections for this same purpose in patients who had brain surgery and the incision on their head was causing symptoms. However, for them, it was just a few places along the incision. For me, it was literally hundreds of places all over my head and neck, requiring up to 3-4 injections in some spots to fully heal. Only so much could be done at once so, I am still on this journey. Both my chiropracter and my tmj specialist can “feel” the bumps (I call them mountains and valleys) on my head - because in some places the tissue feels bunched up and raised and other places, it feels smashed down. Either way, lymphatic fluid does not drain well through my head. Many places on my head were so hard that a needle could not go through them- and my tmj dentist had a hard time getting the injection into my head on many spots. This is not normal. Your head (as well as the rest of your body) should be easy to poke a needle into. Though the tissue damage did not show up on a scan the neurologist took (the neurologist decided it was nerve damage and I just thought my head wouldn’t drain - not true; it drains best when lying down; I can actually feel the lymph fluid draining - hard to explain), but my chiropractor and dentist could tell that great damage had been done by touching my head and trying to put a needle through it.
Softwave therapy for tissue regeneration and repair has greatly helped repair my connective tissue! https://softwavetrt.com/
This link talks about Softwave healing mitochondria as well.
https://www.softwaveinatlanta.com/blog/energizing-healing-mitochondrial-revitalization-with-softwave-therapy-at-atl-pain-institute
5.)Brain health/Mental health symptoms: PTSD/emotional distress/anger/isolation/anxiety: Magnesium, whole foods B-vitamin complex, iron, iodine, prayer. Journaling. Floxiehope and online groups who understood what I was going through. Deb Moore at Second Look - The Fluoride Toxicity Research Collaborative (FTRC) - was very knowledgeable about how to stay away from fluoride and the fluoride connection to fluoroquinolone toxicity. She also had ideas and recommendations for homeopathic doctors. For me all brain symptoms and emotional symptoms come back with fluoride and chemicals. So clean eating and living is necessary. Finding doctors, my chiropractors, who believed me and supported me emotionally was incredibly healing as well. Healthy relationships/friendships/etc are a must to heal - toxic people make symptoms worse and healing harder. This includes doctors who do not believe symptoms.
6.) Thyroid/hormone problems due to fluoride toxicity: Dr. Amy Myers book, The Thyroid Connection: Iodine (I eat seaweed for iodine b/c I don’t handle supplements well, but nascent iodine from globalhealingcenter.com is also good; I used a homeopath called Pitui Liquitrophic for cleaning out the pituitary gland and hormone system. I was able to heal my thyroid naturally - the book by Amy Myers also talks about solutions if you cannot heal it naturally also. Really good information.
7.) Chronic Fatigue Syndrome: Diagnosis and Treatment of Chronic Fatigue Syndrome and Myalgic Enchelatitis Second Edition by Dr. Sarah Myhill. This was a very informative book and I would recommend it to anyone who has problems with energy and fatigue. She is a functional med doctor and so still does recommend medications - I use homeopaths instead of medications. The Wahl’s Protocol by Dr. Terry Wahls was an incredibly helpful book on how to eat and heal mitochondria. Organ meats really help my brain and energy - however, I hate them. So, I cook chicken liver, freeze it, then add a couple pieces to a smoothie I make - you cannot taste it!! I know it sounds gross, but you really can’t taste it. I put coconut milk, greens, blueberries , maple syrup, flax seeds, cardamom spice, cinnamon, liver, and distilled water for my smoothie. Lots of great nutrients all at once and easy to make.
With all that said, staying away from fluoride and detoxing mercury and fluoroquinolones with C60 were the biggest treatments I did to improve chronic fatigue. Every right nutrient helps and is needed for energy and every toxin that is out is helpful as well.
8.) Fluoroquinolone Poisoning/Fluoride Hypersensitivity/Multiple Chemical Sensitivity/Mercury Poisoning/Heavy Metal Hypersensitivity/Food Intolerances: For me, food intolerances went away, but would start back up if I have too much fluoride, chemicals, or heavy metals in my system. I eat organic, gluten-free and only have sugar every once in a while. I do have to try to avoid fluoride, which is extremely difficult - and impossible to do completely - I recommend SAAT acupuncture for desensitization and I recommend contacting Deb Moore at Second Look - Flouride Toxicity Research Collaborative if this happened to you for how to stay away from fluoride and what filters to use and other helpful information. If you are unsure if you are now hypersensitive to fluoride (can be hard to tell if not as sensitive as others are to it - but it will still be hurting your body whether or not you can “feel” it if you did become sensitive - I can feel it) - SAAT will test and treat and there is a test called the ALCAT, which tests for allergens including food and environmental but does mot treat. Fluoride is one of the chemicals it tests for hypersensitivity.
There is no shower filter that works effectively to remove fluoride for those of us who are hypersensitive. No charcoal system, no reverse osmosis system - all on the market still leave enough fluoride that I cannot take a shower. I heat up distilled water on the stove. It is a necessity for me. Clearly filtered pitchers work for removing fluoride from drinking water. I use their water bottle and pitcher if I am staying somewhere besides home. Smart water is the best bottled water I can find. At home, I have a large distiller by Durastill. The small counter top ones do not take out all the fluoride. Deb Moore, Second Look - FTRC, said the level of hypersensitivity would go down with time, though I would always be hypersentive and need to stay away from fluoride. It’s 7 years out, and so far, that is true. I have read that people can eventually not be sensitive to chemicals after years of detoxing. I still am so I may just not be there yet. There are still some foods that bother me. I used the SCIO, quantum biofeedback machine, to desensitize some foods.
SAAT (Soliman Auricular Acupuncture Therapy) for allergies, including toxins, like fluoride. It has helped me desensitize me to fluoride somewhat - but they said likely I would need to detox for it to help further. The reason I have a hard time detoxing is that everything, including vitamin C, kicks out fluoride, which poisons me. I knew I needed to detox mercury - and I found Organic Orange Peel Tea and C60 purple power.
I Tbsp of organic orange peels (dried), in 1 cup of distilled water (I just boiled the water, put the peels in a tea cup with filter and poured over the water and let sit at least 20 minutes, up to an hour, to get the benefits - then drank. This pulled out mercury (and from my reading, probably other heavy metals, and definitely also detoxed fluoride. Which poisoned me because I tried it daily. So, I went to 1x every other week). I will go back in a few months after I have had more time to detox mercury and will do SAAT again to further desensitize to fluoride.
Note: Both Dr. Pompa and Dr. Andrew Cutler (inventor of Cutler Mercury Chelation) used Dr. Cutler’s Mercury Chelation protocol - I did not. Due to my many bad experiences with medicines and supplements, I chose to drink organic orange peel tea instead. There is no doctor approved program for orange peel tea - I did this on my own. The only evidence I have for why this worked for me is this article: New Material from Orange Peel that can Clean Up Mercury - the researchers extract the limonene from orange peel plus add a sulfur compound. Orange Peel has limonene in it plus sulfur and lots of vitamin C. I can only imagine that making a tea out of this combined the necessary elements to extract mercury and other heavy metals just like they did in their research, though I cannot prove that to you with a study. You will have to decide what you want to do with the help of your qualified healthcare practitioner.
C60 (carbon 60 fullerenes) - C60 is the only supplement I found that successfully pulled out the fluoroquinolone antibiotics (whatever toxic combination that entails) for me. This article on the Enhanced adsorption of fluoroquinolone antibiotic using doped C60 in the environment is what gave me the idea to try it for the body. After the first dose, I could feel “pulling” from my throat, neck, head, lower back, eyes, jaw, and sinuses. After a few weeks, for the first time in 8 years, I did not feel “sick” just tired still. (Energy is usually the last part of health to come back while healing.) The right C60 product brand will have used a process called sublimation so the product will be clean and not use solvents to extract the C60. I use the one I linked, C60 purple power, and I get it in Olive oil because I read an article by Dr. Rowen (top ozone doctor in the US) that it works best in this oil, but also works in the other forms (MCT, Avocado, and gummies). I am fluoride hypersensitive but this holds onto fluoride so I do not get poisoned while it pulls it out as long as I go slow. I started with only 1/4 tsp every few days, and went up to 1 tsp a week (1 tsp daily is recommended). I found some studies that C60 was able to pull out mercury and different fluorides (for me fluoroquinolone poisoning is also mercury and fluoride poisoning). C60 is also supposed to be able to hold onto many toxins and heavy metals. Studies have shown C60 to be a mitochondrial protectant, anti-tumor, anti-inflammatory, as well as antioxidant, and has many other benefits including reducing allergies.
9.) Gut/Brain issues: Best detoxes: Ionbiome and zeolites. These two were best used in conjunction with each other for me, and I have read others who say that as well. Ionbiome healed my gut and is a great detoxer of heavy metals, fluoride, and other toxins. Zeolites is great detoxer of fluoride, heavy metals, parasites, Candida , mold, and other toxins. However, if you are hypersensitive to fluoride, like me, these have to be used slowly. I can only take 1 spray of zeolites (I get mine from The Good Inside at Touchstone Essentials and 1 tsp of ionbiome (Restore Gut Health & Microbiome - Intelligence of Nature – ION*) every couple of weeks. That’s how sensitive I am to fluoride. I ended up in the ER because when I first started taking zeolites, I did not know they pulled out fluoride really, really well and I began getting fluoride poisoned but I didn’t know it - the symptoms were heart attack symptoms and tasting dish soap going down the back of my throat (the CDC website says people taste soap when being fluoride poisoned - it’s true!). I still use zeolites because it’s great, but I’m cautious. Ionbiome kicks out fluoride too, so I’m cautious with that as well. But it did heal my gut. (Also, my son had gluten/wheat/dairy allergies so I tried ionbiome with him as well - after 6 months, he could eat all of that with no problem. He continues to take it several times a week.)
Ozone has been shown in studies to pull out the fluoroquinolone antibiotics. I did not have a doctor's office close that did ozone so I purchased a medical grade ozone machine from Longevity Resources. This is the company that many doctors purchase their machines from. Their customer service is really helpful to help you understand what you need. I purchased the oxygen from welding companies, which is the same as medical grade ozone, to use with the machine. You will have to do your own research on this if you think this is something you need. I read a couple of books on how to do this before I began using it. Vitamin C and iodine are both cheap and work well to detox fluoride. I found organic whole foods vitamin C to work best instead of ascorbic acid, and organic seaweed snacks (seasnax) to work better than liquid iodine for me. Infrared saunas also detox heavy metals and fluoride, but are not cheap. A homeopath by Dr Recommends called Industrial Pollutants is cheap and apparently comes up on the SCIO for other people who get hurt by fluoroquinolones as well as for me - it detoxes fluoride-like pollutants as well as other things, but I get poisoned when trying to use it - even 1 drop can be too much and take me weeks to recover - probably because of how well it kicks out fluoride molecules. So, I would not recommend it for those who are hypersensitive to fluoride. However, since it does show up for me and others poisoned by fluoroquinolones, it might be worth considering for others.
10.) Nutrition: I read Dr. Wahls Protocol and follow her food guide pretty strictly. I followed it completely for 2.5 years and then added in some carbs and will drink organic red wine occasionally. I still feel awful if I eat sugar, gluten, or dairy so just stay away and try to only have wine from Dry Farm Wines. I eat organic. All pesticides have fluoride in them. I also use “Real Salt” - that’s the brand, it doesn’t have as much naturally occuring fluoride as other brands do. Himalyan salt has a lot of fluoride - I cannot use it.
11.) Mitochondria: I took MitoQ then also a supplement with CoQ10 plus BioPQQ from globalhealingcenter.com for 3 months. While CoQ10 powers the mitochondria, PQQ helps the body make new mitochondria. Fatigue has been a severe issue for me, CoQ10 alone did not help me to recover energy, but I noticed a difference when I began this supplement. I took MitoQ for the first 2 yrs but then stopped when I stopped noticing benefits. I tried regular CoQ10 and still didn’t notice a difference when I took it alone. I bought a mitoredlight from mitoredlight.com at the suggestion of my chiropractor. It is supposed to help mitochondria and reduce inflammation. I definitely notice that it reduces inflammation. So, worth it for that. It is supposed to stimulate mitochondria to use oxygen more efficiently to produce more ATP. I can not tell if it does this - though my chiropractor says they work, and he is usually right and has done his homework on things.
After learning that fluoroquinolones can cause fully acquired mitochondrial depletion syndrome from a fellow tenacious FQAD survivor, Incredible Fluoroquinolone Diagnosis from a Mayo Researcher, I began taking NAD because of this research article NAD can restore mitochondrial function and energy production in MTDPS liver-like cells. I personally did not find this helpful.
What did help, is C60 and organic orange peel tea (which removes mercury/fluoride/heavy metals, etc) and taking a homeopathic remedy I obtained from SAAT inventor Dr. Nader Soliman, who makes his own homeopathic remedies. It’s called MitoSol. My SAAT practitioners ordered it for me. I take this homepath when I drink the orange peel tea in case it kicks out mercury so the tea can grab it and it isn’t free floating in my system. I found I had more energy than I had in years - as long as I still stayed away from fluoride and did not drink the tea more than a couple times a month - because vitamin C did kick out fluoride.
This link talks about Softwave therapy healing mitochondria.
https://www.softwaveinatlanta.com/blog/energizing-healing-mitochondrial-revitalization-with-softwave-therapy-at-atl-pain-institute
12.) Other effective therapies/treatments for me:
3 day fast resets immune system (can tell what allergic to) and detoxes.
Inflammation (updated 11/15/23 Turmeric - globalhealing.com has a great turmeric supplement. I make my own. I read in Dr. Russell Blaylock’s newsletter that mixing olive oil with turmeric in cooking was helpful for inflammation. I decided to make it into a supplement. This works well for me.
EMF protection I became sensitive to EMFs after being poisoned. I wear a necklace and have a whole house plug in from Electromagnetic Field (EMF) Safety from Safe Space Protection. I also wear blue light blocking glasses from amazon.com while watching tv, using a computer, or looking at a phone.
Biomat for bed from ultimatelongevity.com - a grounding mat.
Mitored light for inflammation and detox (mitoredlight.com) - also supposed to help collagen so some use this for less wrinkles - for me, Im careful not to do more than once a week because I’m sensitive to fluoride being pulled out.
Infrared sauna for detox and supports mitochondria - I’m careful not to do this very often because it also pulls out fluoride.
Coffee enemas - detox and increase glutathione by 600-700%. Highly effective and much cheaper than supplements of glutathione. Great liver detox. (National Research Council; Diet, Nutrition, and Cancer. National Academy Press; 1982:15-7,15-8. Roasted coffee has about 50% less glutathione-S-transferase-stimulating effect than green coffee, according to research by Lam, Sparnins and Wattenberg [Cancer Res. 1982;42:1193-1198]).
Exercise: I do what my body and energy level will allow for exercise- I cannot do yoga or run because of how my connective tissue was damaged, but I can do some walking.
Fluoride tea - when I accidentally get too much fluoride, this pulls it out. I'm careful to not drink more than 1-2 cups a week and only do as needed because it will pull out too much fluoride. https://www.hannasherbshop.com/products/frdtm-fluoride-tea
Spirituality is very important to me and I wouldn't have healed without being able to ask questions and get answers from God. The ideas would come or I would find articles on symptoms or situations I was praying about that was helpful. Prayer is a type of energy medicine and in the book Energy Medicine: The Scientific Basis by James L. Oschman talks about how and why prayer does heal scientifically - really good book for anyone interested in energy healing/energy medicine. Reading scripture and the promises of God in the Bible gave me hope and peace.
Magnesium: helps build collagen and is needed in at least 300 biochemical reactions in our bodies. Magnesium is the number one recommended supplement for FQAD. I have also read that it is protective against fluoride toxicity. I make my own magnesium oil. 1 cup of distilled water plus 1 cup Ancient Mineral Magnesium bath flakes heated on the stove and then poured into a glass spray bottle. If you prefer an already made lotion, Magnaporium Magnesium Lotion is a good option.
Side Note: Stem Cell therapy: I did NOT try this thearpy (expensive $10,000 per injection - plus I get hurt by therapies others do not because of my extreme hypersensitivities), but I have read that has been helpful for some, including Dr. Mark Ghalili, DO of Regenerative Medicine LA | Natural Medicine | Alternative Medicine. He himself was paralyzed by a fluoroquinolone antibiotic and through his own research, was able to heal. Some people have found his treatments helpful. Others not. It may depend on how badly and in what ways someone is injured by these antibiotics. Lots of people can heal in 2-3 years when injuries are considered mild.
Pelvic Floor Therapy: Bladder issues were a problem I already had (have read that both fluoride and mercury poisoning can cause this as well - no surprise) but after I was fluoroquinolone poisoned - things got worse - I eventually saw a physical therapist who specialized in pelvic floor therapy to help Interstitial Cystitis and other bladder conditions. That plus my using cream helped. She did dry needling and other techniques. updated 2/2024 - Softwave worked better for me plus was MUCH less painful. However, there may be benefits to both.
My Age Well Cream - A life saver for me for pain and inflammation. I developed this cream for Interstitial Cystitis (IC - bladder issues), detox, and anti-aging cream. Marshmallow root and other remedies for IC did not work well for me. Using my magnesium spray on the outside of my bladder and rubbing it in well is extremely helpful. Dr. Russell Blaylock, neurosurgeon has said that magnesium is needed for IC. Also, I started making my own cream which helped inflammation, pain, and urgency symptoms for me as well as gave me a natural way to detox and quality ingredients for skincare. I also developed morning and night facial oil skincare products that work well and are high quality and without chemicals or additives. I do plan to sell this cream and facial oils so others can also have access to this treatment and good/clean/safe skincare routines. You can follow my substack Ageless Skincare Line for more information.
For me, fluoroquinolone toxicity was not a one-time poisoning. I felt poisoned every day for years. For the first 1.5 years, I felt like I was walking in an ocean. For the next several, I was dizzy and my head was full and heavy feeling and felt like it was leaning to the left. Very hard symptoms to describe. My head was not draining right. That’s when I talked to my TMJ dentist and told him I was desperate and ozone injections into my head was my last hope (an idea I received after praying about this). My TMJ specialist had learned 3 months prior how to do ozone injections. I had been seeing him for 2.5 years at that point, and he knew I was not getting better. He agreed to do ozone injections in my head, neck, and jaw to see if this would help me. But it did take over 3 years of doing the injections because I could only handle so many at a time and could only heal so much. It worked though. I am so grateful he was willing to try.
I am telling my story to gain awareness of fluoride, mercury, and fluoroquinolone poisoning as well as to hopefully help others heal. Many of these ideas for healing will help other chronic illnesses as well. Maybe an idea will help or maybe it will just give you hope until you discover or are led to a treatment or therapy that works for you.
God did not leave me alone in my journey, but put the right people into my life at the right time with the right help. God sent my husband (married July 2021) who supports me and is emotionally healthy and loving - this matters for healing! And God gave me doctors, friends, and family who believe I will heal. And the many people I mentioned in online help groups and websites. So much healing and learning has already occured for me on my journey. However, I am still healing, my body has not plateaued, so I am using the time and energy I do have to try to help those behind me - people who have chronic physical or mental illnesses of all kinds. I am hoping you find healing, love, and reason to hope and believe in a better life, in good people in this life, and in a good God in forever. God goes after even one lost sheep (Luke 15:1-7). You matter to God all by yourself.
More information on FQAD:
For a more scholarly read on symptoms of FQAD, or an article to give to a doctor if you or someone you know has taken a fluroquinolone antibiotic and is experiencing symptoms and need to explain your symptoms to a doctor:
Doctors:
There is now a team of doctors who formed the Fluoroquinolone Antibiotic Awareness & Healing Alliance (FAAHA). From their site: “The first alliance of its kind, FAAHA, includes healthcare providers and doctors from all over the country, whose experience is unmatched in helping with Fluoroquinolone Toxicity. These doctors and providers are joining forces, to develop best practices and learn from each other in helping Floxed patients get better and heal. Look no further - You now have a team of experts comfortable in addressing your challenges and giving you Hope in healing. If you were Floxed, and are currently undergoing treatment for Fluoroquinolone Toxicity, with little to no improvement in symptoms, or even with new or worsening symptoms, please get a SECOND OPINION. It is possible your testing was incomplete, the full extent of the damage was not fully assessed and therefore your treatment is not working.”
Dr. Mark Ghalili, DO of Regenerative Medicine LA | Natural Medicine | Alternative Medicine, is a doctor treating these symptoms. He himself was in a wheelchair because of a fluoroquinolone antibiotic and through his own research, was able to heal. Some people have found his treatments helpful. Others not. It may depend on how badly injured someone is by these antibiotics. Lots of people can heal in 2-3 years when injuries are considered mild.
Floxie Hope site lists other doctors who may be helpful (example chiropractors who understand floxie neck - meaning a hurt neck because ligaments/tendons/connective tissue was damaged severely and may need ozone injections to heal (mine did need the injections)
My Doctors:
Drs. David, Kyle, and Shirin Gulledge of Truehealth in Overland Park, KS, are my chiropractors and though they do not “treat” FQAD, they greatly help the structural damage caused by the disorder as well as offer nutritional and detox advice. Their functional medicine side offers weight loss programs and supplements and homeopaths toward health and overcoming certain health challenges.
Dr. Larry Pribyl of the Center for TMJ and Sleep Apnea, is my tmj specialist and integral part of my health journey. He and his staff treat tmj disorders and help sleep apnea sufferers with appliances and other treatment options. Dr. Pribyl is highly skilled in these areas and many dentists I have talked to are happy to have a referral source to send their tmj patients to because of the level of pain and pathology present in these challenging disorders. He does not treat FQAD, but was able to treat my tmj symptoms caused by the disorder.
Fluoride websites:
Fluoride Toxicity Research Collaborative
4 Stages of Fluoride Poisoning
Books on Fluoride:
The Devil’s Poison:; How Fluoride is Killing You by Dean Murphy DDS
Fluoride the Aging Factor: How to Recognize and Avoid the Devastating Effects of Fluoride Paperback by Dr. John Yiamouyiannis
The Truth about Water Fluoridation, Second Edition by Charles Eliot Perkins
Fluoridation: The Great Dilemma by George L. Waldbott, M.D. in collaboration with Albert W. Burgstahler, PH.D. And H. Lewis McKinney, PH.D.
Websites/support groups for those hurt by fluoroquinolones or have FQAD
Second Look: Fluoride Toxicity Research Collaborative
Here is a link to practitioners trained by Dr. Nader Soliman for SAAT acupuncture (desensitize to allergies; environmental/chemical/food/mast cell activation
https://alternativemedicinecenter.info/list-of-practitioners/
Here is a link to possible fluoride hypersensitivity symptoms (not a complete list)
https://slweb.org/ftrcpossiblesymptoms.html
Here is a link describing fluoride hypersensitivity from being fluoroquinolone poisoned.
https://slweb.org/ftrcfluoroquinolone.html
Mercury websites
Mercury Toxicity and Symptoms - List of some possible symptoms
Mercury Toxicity/Poisoning - This is the best article I’ve read on Mercury Toxicity/Poisoning - this article helped me understand some of the effects I had from fluoroquinolone poisoning (example: GABA/Glutamate issues, head tightness and pressure, and many symptoms others I experienced)
Dr. Andrew Cutler: Mercury Chelation
Note: Due to my many bad experiences with medicines and supplements, I chose to drink organic orange peel tea instead. update: 2/2025, C60, Diatomaceous Earth, Organic Kombucha tea with Spring Water, Ionbiome have all been helpful for detoxing for me - they all detoxed differently and were all needed for me.
*There is no doctor approved program for orange peel tea (or any other detox I did) - I did this on my own. The only evidence I have for why orange peel worked for me is this article: New Material from Orange Peel that can Clean Up Mercury - the researchers extract the limonene from orange peel plus add a sulfur compound. Orange Peel has limonene in it plus sulfur and lots of vitamin C. I can only imagine that making a tea out of this combined the necessary elements to extract mercury and other heavy metals just like they did in their research, though I cannot prove that to you with a study. You will have to decide what you want to do with the help of your qualified healthcare practitioner.
What an absolutely fascinating yet terrifying journey my friend!!! I am digging into your links to learn more. Absolutely amazing information you have shared here!